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“cindy roch”

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  • The family

    in the spiral of rare diseases

    by Reptilian, Cindy Roch, Enzo Herbette ...
    As soon as her son Enzo was born, Cindy "knew" that something was wrong. Months of isolation, mistrust and misunderstanding followed... a period of diagnostic wandering typical of rare diseases.Cindy, Lola and Enzo tell their stories of how a rare disease is a daily struggle for families. It's a battle in which each one of them fights his or her own battle... as mother, sister and patient."In the ... Read more

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